Bless you for your wisdom, Chacón.
Hurricane Harvey has come and gone leaving the Flood from Hell in his wake. I feel not one bit qualified to write about, “the Experience of Harvey.” I will say, in a nutshell, we were fortunate and had almost no damage from the storm. Certainly, nothing worth mentioning. There was anxiety and sleeplessness, but honestly, I have that every night. It’s built into my genetic code. I was more worried about my daughter worrying too much about us than I was worried about us. Sort out that mental spaghetti, if you can.
We were on the periphery of this storm and in almost all respects, despite the fact that almost fifty inches of rain fell on our home. I feel lucky, relieved, and guilty as hell.
In the middle of the storm, there was little to do but listen to wind and rain and hope for the best. We had no boat and no special capabilities, so, we just stayed put. I tried to write, but my mind wandered constantly, taking me to my phone to check radar or to the window to check the water level in the street. If I wasn’t checking the road or the phone, I was watching the news for the latest predictions and hoping for a change for the better. Any kind of focus on creative thinking became impossible.
Finally, after the rain abated and the temperature dropped, I went to our garage where I sorted through boxes my husband had pulled down from the attic months before in an effort to prepare for a retirement move. As the wind buffeted the garage door (and made me fear for our trees now sitting in soaked earth), I looked through memories that went back over forty years.
Most were newer: junior high school pictures of my daughter, a copy of a short story my brother wrote about fifteen years ago, and anniversary cards from my husband. Many were much older: My Girl Guides journal and lapel pin from England (ca. 1973), a tiny, white New Testament from about 1970, and a large maple leaf I’d picked up somewhere around 1978.
I kept a leaf. Actually, two. Not beautiful flowers or stunning butterflies. Leaves.
Now, I love trees. If trees were animated creatures, I’d say they were my spirit animals. But, to keep a leaf in a book for forty years?
It struck me, looking at that leaf as the storm raged around us and knowing, all around me in the huge Houston metropolitan area, thousands of people were losing their homes, cars, livelihoods, perhaps family members: what a lot of crap we keep for no damn good reason.
You hear it a lot at these times, as people wait to find out if their house is safe from rising waters or as they swim away from their inundated home: “They’re just things.”
They are and they aren’t. They’re things we spent years clinging to for some reason. They’re things we’ve invested with emotion, meaning, connection to the past. They should be “just things,” but we will still feel an ache when we think about them floating down a street into a bayou and into the Gulf of Mexico.
If they’re just things, at what point do we stop collecting them? At what point do we admit that it was absurd to lose, let’s say, three thousand dollars worth of cat toys to a hurricane, so we should probably not replace them in full. (Thank you, Steve Martin)
I’m not saying cat toys (or shoes, or purses, or fountain pens, or electronics, or even forty-year-old leaves) are bad. I just wonder if, in saving all these things, this stuff, we need to spend more time on ourselves, our souls, if you will. Some people can balance the two, stuff and soul, beautifully. Speaking for myself, I have spent far too much time in life not taking care of my soul, but taking care of what I thought others expected of me. When I couldn’t do that very well at all, I sank into despair and simply did nothing. Often times, I bought stuff to fill the void. That stuff eventually found its way to boxes that ended up in the attic. Often, I picked up things, or kept bits of my past, as if they were somehow parts of my empty soul, and they too found their way into the boxes in the attic.
I kept leaves.
I haven’t answered my own questions. When do we stop collecting? When do we stop clinging? Does it take a flood to remind us every time we start getting too attached?
If life is cyclic, and it seems to be so for me, then maybe this is one of those cycles. When we next move, if we do as planned, it will be roughly the same number of years in this home as in our last home. We will be downsizing again and much will be thrown out, donated, or sold. Time, not Harvey, will have cleansed our home. I hope, however, that I will have learned by then not to restock the new home with stuff. There will be a time when I am too old to sort through boxes. When I’m gone, I don’t want my daughter sorting through leaves.
I came away from Facebook for a few weeks. I logged back in a few times not because I wanted to, but because I had to log in to some other damn this or that I had linked to (Instagram, Pinterest, etc.) at one time or another. And because every time I tried to do this one thing on my iPhone it splattered a warning on my phone that said I had to log into my Facebook account without explaining why, even though what I was doing hadn’t a damn thing to do with Facebook (or Instagram, or Pinterest, or etc.) .
I just wanted a rest. I didn’t like disconnecting from my friends and family, so I kept Messenger connected. Funny thing: It was hard for me to escape Messenger conversations prior to deactivating my Facebook account. After deactivating, I’d go two or three days without Messenger contact. I didn’t mind the sudden “radio silence,” of course. It was just interesting. Out of sight, out of mind, I guess. I seem to be living in that phrase lately. If I stay away from television, Facebook, news sites, and even other people, I’m much happier. So, maybe it should be, “out of site, out of mind.”
I’m not suggesting being uninformed or disengaging entirely from the world. If anything, people like me need to engage and speak up in these times. However, I do think there is wisdom in first taking stock of what is healthy and unhealthy for each of us. What I found in my last few days before I first deactivated my main account, was that click bait, blaring headlines, and well-meant but unwanted hand-patting were unhealthy.
Below is a capture I found that illustrates one aspect of why I stepped away. It isn’t really that the news is “fake” so much as that it is distorted. News bloggers (I don’t like calling them writers; half of them can barely compose a proper sentence.) take a grain of truth, layer mud and dung on it, coat it in sugar syrup, then wrap it in some pretty paper and call it “news.” We gobble that shit up. Empty calories with a dose of disease.
That disease was taking too much out of me each time I confronted it. Each time my friends and family confronted it, I worried how much it took and continues to take out of them.
I also began to look back on last year with immense sadness. I lost two of the loves of my life, my Momma and Daddy. With each new loss (oh, so many) of my generational icons, it felt like the world was just slipping away and I too would be slipping away with it sooner rather than later. This is what some people don’t understand about getting older and watching your heroes die. If they are so lucky as to get older, they will perhaps understand that looking at such loss is also looking at one’s own mortality. It’s selfish, perhaps, but as natural a part of grief as the sadness.
My grief brought on the old familiar frustration of not having accomplished the things I’d wanted to accomplish in life and fear of not having time to accomplish them. I looked ahead into an ugly future that would possibly be even further truncated. I lost hope. People attempted to give me hope with platitudes and religion, neither of which are any comfort to a skeptic in grief.
It isn’t that I don’t believe in a Something. Most days. I simply don’t believe it will hold us up above the flames. I have been in the flames plenty of times. I have also had great joy. I have been exceptionally fortunate. I am thankful, for sure. I recognize all the good things I have in life. But the good does not preclude the pain, sadness, grief, anger, disappointment, outrage. I am allowed those. If there is one thing I have learned, it is that repressing my emotions is at the top of the “unhealthy” list for me. I will continue to wail and cry when I am in pain. I will smile and laugh when I am genuinely happy.
I have found what is healthy for me. In no particular order: 1) Dealing with my emotions on my schedule, with tools I choose, not what others set out for me. 2) Cutting out ugly television. No more Criminal Minds, SVU, war movies, or any such shows/movies. I’m tired of real people hurting each other. Why should I watch fictional people hurt each other? 3)Time with my family. 4) Time with my dog. 5) Time at the page. 6) Time with nature. 7) Time in the rhythm of my breath. 8) Each Present Moment. It’s a concept that’s hard to fully appreciate after fifty-two years of looking behind me and feeling regret and looking ahead and anticipating failure. But, I appreciate it a little more each day. With that appreciation comes the realization that I don’t need hope, I simply need to be and do. I think number 8 wraps up numbers 1 through 7.
To continue to appreciate the present moment, I must continue to live in it. To live in it, I must also forego the diseased mud-dung candy on Facebook. I do hope that those of you who aren’t already following my “author’s” page will do so. Someone (thank you, Carol) has kindly accepted the task of keeping a casual eye on that page for me. As before, my Messenger will remain available. Until I’ve reached a point that peace comes readily when I encounter the mud-dung candy, my personal page is going to go dormant in a couple of days. It’s simply to easy to react to links. This dormancy could be two weeks or two years. Who’s to say? Also, grandchildren override EVERYTHING and must occasionally be afforded a log-in.
This is not a plea for attention, nor am I isolating. I’ll be on Instagram, still. I’m just bowing out of this particular spiritual poison.
I’m closing with a video I posted some weeks ago. I play this song often which means I cry often. There is method in that madness. Each time, this song reminds me not so much of what I’ve lost (though there is that) but what is important to me. Some things “got lost along the way” in the last thirty-five years, give or take, as they do for a lot of us. I’ve determined, at fifty-two years old, the only way to get them back is to live in the present moment. From my heart to yours.
This issue has been running around in my head for months. I have neither the historical nor the theological training to address it, so I am pleased to find Tim Miller’s work here and reblog it.
“In the beginning was the Word, and the Word was with God, and the Word was God.” (John1:1, KJV))
In the original Greek, “Word” was “Logos” and it meant, among other things, reason and discourse. The writer (or writers) of the Book of John, used Logos to describe a spiritual entity, grown from the power of God’s reason. This Logos, this Word, had so much power that He came down in human form. Language in itself had power. Christians should understand this given the commandment: “Thou shalt not take the name of the Lord thy God in vain; for the Lord will not hold him guiltless that taketh his name in vain.” Exodus 20:7 (KJV)
Today, we rarely acknowledge the power of words. They are as throw-away as used tissue. They are “just words.”
Are these just words?
TRUMP: “Yeah that’s her in the gold. I better use some Tic Tacs [breath fresheners] just in case I start kissing her. You know, I’m automatically attracted to beautiful… I just start kissing them. It’s like a magnet. Just kiss. I don’t even wait. And when you’re a star they let you do it. You can do anything.”
BUSH: “Whatever you want.”
TRUMP: “Grab them by the pussy. You can do anything.”
I saw an internet meme that said that since these words were not actions, they weren’t so bad. The meme claimed, that these words expressed “what the person wants to be, not what they are.” Like, “I want to be a fireman when I grow up.” So, I guess, in this case, that means, “I want to be a rapist when I grow up.” Yes, that’s so much better.
Words, however, are not just words. Word are not separate from action for in their power they have action on us. We may not see it as physical/mechanical action, but they are not tissue or ephemeral fluff that disappears the moment they are spoken.
Those particular words spoken by the candidate create actions. Several.
- This is a man that many people admire. A small population could see this as tacit permission to follow his lead. “He does it, so can I.” I hear the protests, already. “That doesn’t make it Trump’s fault!” Of course not. It makes it the fault of those cheering him on as a fine, upstanding citizen worthy of representing our country rather than condemning him for his behavior. It makes it the fault of those calling it “locker room talk” when it is, instead, an assault strategy. Say, “I wish I could just grab her pussy.” Fine. You’re a sleaze and you’re desperately lonely. You’re not evil. However, say, “Just grab her pussy. You can do it. You’re a star.” That’s an assault strategy.
- In the population there are already perpetrators. Every one of them has just been validated by these words that were “just words” and by everyone who gives the speaker a pass.
Men like the old cowboy that molested me when I was twelve have just been validated. It’s all good. Boys will be boys. Just grab her by the… Yup. Perfectly okay to take what you want. Half the voters love him so half the country must agree with him and with me. Just words.
- That validation has a flip side. The victims are being re-victimized. For those of us who can stand up and spit out the gall and the absurdity of it, we will go on, even though our pain and anger remains. For those for whom it is just too much pain to bear…my heart breaks.
To those who will continue to hold that candidate up as a paragon of virtue or even say, “Yeah, he’s an ass, but he’s good for the country!” or, as I saw the other day, “Fuck your feelings!” I pray you never have a daughter or granddaughter or any loved one that is harmed in this way. I pray it is never you.
- Finally, let’s not forget the good guys. The men who don’t behave like people are trash they can use and throw away. The men who actually love and respect their partners. I know there are many on both sides of the aisle. They too are harmed by these “just words” and they don’t always know it. As a survivor, it becomes difficult to trust again when re-victimized in this way. We have to be able to look at the men around us and know they get it. We have to know we can trust them to protect us and that trust is damaged if they don’t get it. Especially when “every guy talks/thinks like that” rings through the air.
So, no, they aren’t just words.
A note to anyone throwing the Bill Clinton grenade. 1) Yep. He’s a dog. He’s not running for president. If he were, I wouldn’t vote for him. 2) If you’re going to point at Bill Clinton and his dog-ness (poor dogs!) then you MUST point at Donald Trump. You can’t use Bill Clinton as an excuse for Trump’s behavior. You can’t say, “Bill Clinton did this X years ago so Trump can do it now.” By that logic you can say, “Stalin slaughtered tens of millions of people, so we can slaughter tens of millions of people now” — that’s just stupid.
As a writer, I believe it’s my job to imbue my words with compassion, integrity, and reason to the best of my ability. We humans have been given this gift, this powerful tool, Logos, reason, that can be used to lift us up as a species, rather than humiliate and harm others.
As Christians, we were given Logos, the Word, and He had a lot to say about how to treat other people. I don’t recall “grab ‘em by the pussy.”*
My dad, my favorite amateur (as in, non-professional) grammarian, died last week at the age of eighty-six. Dad could, in one breath, chide me for ending a sentence with a preposition and quote Winston Churchill’s famous comment on pedantry. From my father, I learned both the love of language and the frustration of perfectionism.
As a child, I imagined myself to be more like my father than like my mother. After all, I had his big, dark eyes, his patrician nose, and sturdy, rectangular German face. I saw him as analytical, brilliant, and in his silence which I reflected much of the time, distant. He was affectionate and protective with me, but he was a man in his own head more often than not, a trait he passed on to his children.
Although Dad was always in thought, that didn’t prevent him from holding me next to him while he watched the BBC or Cronkite then later carrying me to my room and tucking me into bed. He was no “sit down to a play tea party” dad, nor did I want that, as I was the child that stayed in my room and listened to my 45s and read books or played alone most happily.
In my teens, this kind of arms-length parenting continued but I never felt unloved. I admired him and wanted all the more to be like him. I was going to be a scientist like him (with writing on the side). I was going to do it all right. I was going to make him proud of me.
You can see where that’s going, right?
I got pregnant (magic!) at eighteen and Dad and Momma were none too happy, but they gritted their teeth and we all got through it. On the other side of the turmoil was an amazing little girl with whom he immediately fell in love. (Look dad! No preposition.)
The shift in him, from man in his head to the man interacting with the world was subtle but visible. After my first husband and daughter and I moved home for a short time to get on our feet, Dad and Momma developed a strong bond with their first granddaughter and Dad softened. On one occasion, my older brother dropped by for a visit. Dad stood up, strode to my brother, greeted and hugged him for the first time in possibly years. My brother and mother stood with mouths agape.
Later, when I remarried, he not only accepted but loved and respected my second husband. In the long run, he respected my late-gained degree and would ask me biology and medical questions.
Another expansion of his awareness occurred years later, when my niece’s son was born and survived a harrowing birth. I spoke to him not long after. With a trembling voice, this longtime avowed agnostic told me, “someone or something kept [his great grandson] with us.”
Daddy spent sixty-four years with his one great love. After Momma died, he shuffled around the nursing home where the two of them had shared a room for some time. He died a little more than two weeks before the anniversary of Momma’s death.
Over the years, I have evolved to be more like my mother in many ways, both emotionally and physically: more chatty, more approachable, more padded around the middle. Yet I carry much of my father’s skepticism and contrariness with me. Over the years, Dad had evolved in many ways but toward the end he retreated, understandably, back into his own head where, I imagine, he and his wife were whole and happy again. When I spoke to him last he said, uncharacteristically for that curmudgeonly old grammarian, “I love love you completely.” I knew what he was telling me. That he was probably saying goodbye for the last time. I just thought he was mistaken.
I love love you completely, Dad. I will miss you always.
As I drove to the store on December 30th, a woman in a fancy pickup (oxymoron on wheels) rode my bumper despite the fact that I was exceeding the speed limit by several mph. She passed me as soon as she saw the smallest gap, got one car ahead, and pulled into the same parking lot I pulled into seconds later. I daydreamed of asking her, as she picked through the produce section, if she had an emergency salad to get to. In my part of the world, however, such smart alek words can get you shot. I don’t say that lightly.
I decided at that moment that I wasn’t going to rush anywhere the rest of the day. I’ve never believed that there was any place I needed to go that was worth risking my life or someone else’s though I get impatient, too. The passage of time has weighed on me lately, but time on my mind doesn’t mean time to kill or be killed.
It’s true, the way we mark time is largely a human construct: days, weeks, hours, minutes. But months, seasons, lifetimes: Nature has foisted those on us. Since my mother’s death, the passage of days has been, well, a daily thought. An internal battle, even. It began during our time together in a tiny nursing home room those few days before she died.
We had some sweet, gentle moments: laughter, bad puns, a lot of hand holding. I’ve always been amazed by my mother’s hands. No matter the weather, the wrinkles, the dish loads, her hands were like the finest, lightest silk. Now they are ash and it is hard for me to grasp that. I sigh—she would have chuckled at that unintended pun. It’s what we do as a family: make bad jokes. It’s part of what makes us such a close family.
There were moments during which I allowed myself unpleasant thoughts. Cynical, I suppose. “Is this all there is? What did she get for all she did for us?” thoughts. Of course, that’s the angry view, the grieving view of the end. I had been grieving for much longer than the many months Momma had been suffering from dementia and a bad fall. I’d been grieving since she left Texas some seventeen years prior. I knew there was much more—more joy, adventure, choice—to her life than I was allowing. But in grief, those things look small while the hurts loom like dragons and disease. Thankfully, those thoughts were brief and mostly I reveled in my precious time with her.
I admit I’ve nursed those hurts all year. A digit change won’t fix that but perhaps Christmas Eve at Munger Place Church and time with my daughter and her family has planted a seed.
I struggle with faith daily. Again, I don’t say that lightly. Each prayer, even “grace” before a meal, is an argument with this “creator” some people call God. At the same time, I can’t free myself form my belief that some sort of divinity has had major influences on my life that coincidence can’t explain.
Christmas Eve service at Munger was, no surprise, beautiful. Kate Miner’s love for her God poured out of her with each performance and I used up all my tissues dabbing my eyes. I know I seek that moment when in “O Holy Night” I will “fall on [my] knees, o hear the angels’ voices” and it was at this point in the service that I felt a weight lifted from me after almost a year of anger. Not because a divine presence came upon me. Not because I was suddenly healed. There was nothing magical there (except Kate’s voice). Instead, I realized I cannot stand up and be who and what I need to be without first kneeling and being humble to what I have been given. I must work with what the universe/life/God gives me rather than argue with those gifts, even when those gifts seem like curses.
What cemented this feeling was the remainder of the visit with my daughter and her family. After the service, we drove around to look at Christmas lights in the more affluent Dallas neighborhoods. In front of one house was a life-size, longhorn steer sculpture decked with holiday finery. Someone said, “I wonder where they store that in the off season.” My daughter said, “I think that’s a permanent cow fixture.”
It struck me as funny. Okay, adorable. At 32 years old, she’s still adorable. She’s always been beautiful and gentle like her grandmother. Time with her is so precious and like the rest of her family, she has the sharp and dark humor that binds us. I love every minute with her.
Two days later, December 26th, a horrific storm system struck the Dallas-Fort Worth area. We huddled in my daughter’s house where we lost power and listened to the tornado siren. Two major tornadoes struck and lives were lost while we had only some wind and scary lightning. Eventually, the power came back on, our adrenaline tapered, sadness set in, and we went to bed.
On the 28th, my husband and I returned to the bayou and a couple of days later, my daughter sent me a picture of the steer.
I thought it rather sad—frippery and wealth completely unscathed while there was so much destruction in a small town of apartments, trailers, and tract homes not too many miles away. The events of this Christmas came as yet another reminder of the very lack of permanence, the randomness, the brevity, fragility, humor, unfairness, beauty, and preciousness of life.
Fall on your knees.
Here’s a link if you feel inclined to help the folks in North Texas: How to help.
My daughter had a lovely idea given that we were unable to have any kind of funeral or memorial for my mother. She suggested we have a memorial tribute to Momma in Galveston at the beach.
I let my daughter plan the event. She’s a great event planner. Not something she learned from her mother or her grandmother, mind you.
She made paper butterflies (Momma loved butterflies and hummingbirds), and wrote a beautiful remembrance for her grandmother which is not mine to share here. What I can share is a couple of pictures relevant to the trip.*
My mother also loved poetry. She loved my poetry, even though I am not a poet.** Not just in that “unconditional parent love” way. She genuinely connected with my writing in a way no one else did. She’d get excited and show my work to my dad and her appreciation fed my spirit.
To prepare for the memorial, I looked around my house and tried to reconnect with my mother in a house she’d never physically inhabited. I dug an old crocheted afghan blanket out of my closet, smelled mothballs and time, and sat down to talk to Mom about it.
I didn’t sit down to write a poem but to write a letter. As the image of her patiently, meditatively, lovingly creating this oversized blanket perched in the back of my mind, the letter transformed.
It’s not Charles Wright or Maya Angelou even on their worst days, but Momma would have liked it.
* We have since learned not to release balloons. Please do not release balloons. They kill wildlife, whether the balloons are biodegradable or otherwise.
*She had the same response to my brother’s poetry. He is a poet, whether he accepts the label or not.
It was when my daughter was in her most rebellious stage that I called you beyond tears, beyond rage, exhausted and hopeless. I apologized on behalf of myself and my siblings.
“For what, honey?” you asked.
“For all the crap we ever put you through–all four of us. Every stupid, selfish thing we ever did.”
You chuckled and told me there was no need to apologize. You said as you had said before, that you had always wanted to be a mother and you and Dad knew there were certain things that went with being parents.
I listened, shaking my head the whole time, and restated my feelings. “I know, Mom, but still…I’m sorry.”
You thanked me and assured me that the tough times would get better.
Of course, they did. Of course, none of the crap my child put me through changed how deeply I love her. In the years that have followed, she has matured into a woman of strength and compassion who mirrors her grandmother much more so than does her impatient and cynical mother. Apparently, certain genes really do skip a generation. It helps that my daughter spent a good deal of time in her formative years in the bright beam of her grandmother’s heart. She was exceptionally fortunate in that regard.
I don’t know why I didn’t benefit to the same degree that she did from your guidance except for the plain fact that you were, by necessity, tugged between four children and a spouse and all the stresses of modern life in mostly foreign lands. I did benefit nonetheless, such that when my child was born, nothing mattered more to me than protecting her. As she grew, I tried to follow your example where I could.
You left us on Thursday the 29th of January of this year. On Friday morning, I slept in as I often do. I dreamed one of my typically vivid dreams. In it, I drove the old ’78 Buick through flooding rains, narrowly missing several wrong-way drivers until I finally came to a safe stop at your house. I walked in to find you sitting up in bed, looking twenty years younger, healthier. You were singing to a young child who was both my daughter and my granddaughter. You waved your hands joyfully to the tempo of the girl-empowering Disney-esque song. You turned and grinned at me as I greeted you.
I awoke and felt held and loved and at peace.
So many times in my life you comforted me when I was in pain. When I was small and awkward and bullied. When I was struggling through my first marriage. When the Girl was in her I-know-everything-you-silly-parents stage. No small wonder you were there to comfort me Friday morning after you had to say goodbye.
I hadn’t intended my inaugural post to include anything about lupus but such is life. I put off some medical stuff during the last two years, and I’ve got to deal with it now.
A fellow lupus patient once told me that since I could no longer work in the real world, going to doctors was my only job for the rest of my life. To her, if I approached it that way, it would be more palatable. I thought then as I do now — how sad.
I can barely bring myself to write about having an autoimmune disease some days for the sense of self-pity it implies. I don’t want others to think I focus on the problem rather than focus on being well.
I have been in remission for the most part since my husband and I moved closer to his work over eight years ago. I was gradually improving before that time just being away from my lab job and its stress, ultra-violet lights, and bench work. I was fortunate that I could work for my husband at home and rest often. Still, I see multiple doctors every year, even if just for an annual exam. I always come away tired, sometimes exhausted, due to the lab-like environment. If some new symptom crops up, and that happens now and then, I often find myself with a specialist and those doctors can quickly take over my life and send me into a flare with the conviction that something awful is wrong.
I walked away from an annual check-up yesterday with instructions to go to a specialist. In all likelihood, everything is fine but my reaction was to fall into an immediate depression at what might be to come.
I am not afraid of being ill. I am afraid of being treated like I am ill, of being dragged through a dozen tests, appointments every two weeks, and vague pronouncements of “it might be x, but we should check for y.” In the end, the likely outcome will be as it has been in the past, another symptom of lupus that can’t be cured but only managed and is not life threatening but annoying and painful. Even more likely, the doctor will throw up her hands and declare the symptom is probably caused by the lupus and will fade away after a few weeks or months. Meanwhile, for x months, I’ve been prodded, drained of many vials of blood, and forced to sit in rooms flooded with the UV light that makes me sick while they tell me “well, something is making you sick!” Yes, YOU ARE!
Faced with that eventuality, I went shopping.
I’m not big on shopping, mind you. I hate shopping. It puts me under more ugly lights and surrounds me with perfumes. I don’t even care that much about shoes but that’s what I did. I went and looked at shoes. Loafers, for God’s sake! I bought a pair of boat shoes solely in response to the pressure and guilt from the woman that brought me five pairs of shoes to try. I wouldn’t have purchased shoes at all if I hadn’t been thinking about that damn specialist. I’d much rather have a Vanishing Point pen from Goulet Pens.* Already the idea of wasting days of my life in doctors’ offices has me behaving in a way I don’t like to behave, buying things I don’t want from people I don’t need to please.
This is supposed to be my job? Where’s the part where I get paid? Where’s the reward for work well done? I’m not saying my husband’s job is Heaven but somehow paying someone else to make me sicker and more anxious than I was before I spent three hours in her office is counter-intuitive at best. It may be work but it sure as hell isn’t a job.
Is it any wonder that patients with chronic illnesses have so many tangential issues besides their original diagnoses? Between the drugs that damage parts of us while supposedly keeping us alive and the doctors that drive us batty trying to “help” us, we become people we were never meant to be. And let’s be honest, some of those doctors see dollar signs when they see we are well-insured.
I’m not meant to be a lab rat or a pin cushion or a zombie wandering from one UV-flooded room to another or someone’s down-payment on a new Benz. My life’s work will not be a disease. I am meant to be writing, playing with my granddaughter, fishing with my husband at dawn and dusk, or hanging out with my kids on the lake. That my life’s work!
On that note, let’s hope this will be the last you will ever read about lupus on this blog, God willin’ and the crick don’t rise.
*Not affiliated with Goulet Pens, just hopelessly addicted to their products and outstanding service.